tired of being alone

[nitebreze]

I use to be on the lupus boards until they changed it and now i can't figure it out. The only friend I had that we could relate cuz she had sle too, she passed away. No one in my family understands or don't want to. I am just grasping at straws for someone because I am alone. I'm sorry I sound so depressed but, my life is in a turmoil and I need people who understand. I lost my friend chickee's phone number- she was on the message boards too- and we use to talk. But now.....just me and my dog.

[Holly P.]

Hi Chris. I remember you from the AOL board. I am Holly, the one with the ferrets. I left there when it changed to an unfriendly format.
I am sorry you are feeling so alone right now. My family doesn't support me much either. They think it is all in my head. They know I have lupus they just don't care much about it. To them I can just move ahead as if nothing is wrong with me. Thankfully I don't suffer near as bad as some do.
You should find a lot of support here from people who care and understand what you are going through. Just know you are not alone. You have us. We may not be a physical presence in your life but we are here to support you and listen to you, a shoulder to cry on, an ear to just listen and to share a laugh with you also : )

[Kathy]

Is this Chris ass in Nitebreeze Chris?
IF so I remember you from back in the AOL days. Quite a few AOL members are on our main site with almost 700 members.
www.LupusMCTD.com

I am so sorry you are going through a tough time right now, and if anyone can understand it's a fellow Lupie!!

Please come visit us so we can give you all the support and friendship you want!!
I only pop into this sister site when I see a new person has joined. I'm glad we had 3 new members joined so I came to see who and welcome them.
www.LupusMCTD.com

Never feel alone, we all understand what you are going through.
Chris I can call anyone across the USA for free if you want to email me your phone number at [e-mail]
Kathy
AKA "MotherEarthGifts"

[Jessica]

Hey there, my name is Jessica and I have mixed connective tissue disease. I take all the meds for lupus (sle) , I take MTX, plaquenil, dicolfenac, ultracet, folic acid, prednisone, fosamax- doesn't it suck it makes your ribs hurt?:) Not alot of people get me either so you are not alone. I wish I could say that I am a chipper , happy go lucky fighter but...I am not. The truth is I have a real issue with accepting my disease, its severity, its limitations, and my life span, and quality of life. I have no one essentially. I have my husband and my soon to be 4 year old but can you imagine having to take care of a wife and a 4 year old. It provides a lot of guilt. My mother and I have a horrible relationship for many reasons but one minor reason in the grand scheme of things is that she sort of follows scientology and does not believe I should be on "drugs" as she calls them. I get so angry and want to say, Don't you get it. I am sick and thatis hard enough but I do not need to remind myself everyday that I am sick because I have to defend taking my meds, nor why I have to take them. Correct me if Im wrong but Id rather my hair fall out than not have enough energy to play with my son. Sorry for the rant but I had to start somewhere to give you an idea where I am at in my disease and maybe we could chat sometime and who knows become friends:)