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mandy
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  • Oroville, CA
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mandy's Discussions

trial meds
2 Replies

i was wandering if any one has heard anything about med trials. i found one w/stem cell in china but thats a little far for me. non of my meds are helping me so i was just hoping maybe anyone has hea…

Started this discussion. Last reply by Kathy Dec 5.

update

thx everyone for ur encouragement. i still havn' heard about my sono, i missed my apointment, but my dr called me and said my kedneys r doing ok we just need to keep a closer eye, but i might need to…

Started Nov 29

finally went to the dr
5 Replies

i went to see my dr monday and ive been having this jabbing pain in my side for a while, so we ran some blood test and it looks like my kedneys are inlarged or somethings not right so i have to go ge…

Started this discussion. Last reply by Patricia Tuttle Nov 26.

lower ab. pain
3 Replies

so like a week ago i started having a pain in my left side, im afraid it might be my kedney should i bring it up with my doc? its a sharp stabing pain in my side and i hurts constantly and worst when…

Started this discussion. Last reply by Kathy Oct 7.

 

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on Monday
Kathy replied to mandy's discussion 'trial meds'
Mandy I sure don't know of any trial meds out there. Just know of the trials of testing you have to sign up for. One being at the Mayo CLini and one in New York. If you are intrested, I'll go find the link on the other website I have Kathy
December 4
Maria replied to mandy's discussion 'trial meds'
Hey Mandy, This is a pretty handy site to locate some trials by area and you can sign up with them to be notified of studies to come. Wishing you the best~ Maria http://www.centerwatch.com/
December 2
mandy added a discussion
trial meds
i was wandering if any one has heard anything about med trials. i found one w/stem cell in china but thats a little far for me. non of my meds are helping me so i was just hoping maybe anyone has heard of something new out or of some trials going on…
December 2
mandy added a discussion
update
thx everyone for ur encouragement. i still havn' heard about my sono, i missed my apointment, but my dr called me and said my kedneys r doing ok we just need to keep a closer eye, but i might need to have my gull blader removed, cant hold food down…
November 28
Patricia Tuttle replied to mandy's discussion 'finally went to the dr'
Hi Mandy. Thinking about you and wondering what's going on with you. Hope you have a great THANKSGIVING!!!!
November 25
Kasha Deese replied to mandy's discussion 'finally went to the dr'
hey Patricia, Just thinking about you and letting you know that I am keeping you in my prayers. My little sister also has lupus and is currently dealing with her kidney's too. She is 26 years old. She did chemotherapy and seems to be doing a lot be…
November 10
Patricia Tuttle replied to mandy's discussion 'finally went to the dr'
Hi Mandy, I was thinking of you and wondering how you are. Hope everything is going OK for you.
November 3
Kathy replied to mandy's discussion 'finally went to the dr'
Mandy, I'm glad you went! My GFR (blood test for kidney function) wrlier this year went a slow as 30. It's to be greater >60. I drank & drank lots of liquid and got those kidnesys functioning at >60 I know aving a little one takes most your time, a…
October 21
Patricia Tuttle replied to mandy's discussion 'finally went to the dr'
Mandy, Sorry to hear this news. Try not to worry too much until you get your test results. There's no benefit from getting all worked up about this when you don't really know yet what is going on. Easy for me to say, hard for you to do, I know. How…
October 21
mandy added a discussion
finally went to the dr
i went to see my dr monday and ive been having this jabbing pain in my side for a while, so we ran some blood test and it looks like my kedneys are inlarged or somethings not right so i have to go get a sono done and check them out, plus im jaundace…
October 21
mandy replied to Kathy's discussion 'Fall & Winter (vent,ideas,coping)'
sounds good :) im in chico like 3hours away but im always up for a picnic for a good cause. i was accually going to medesto today but is a bit cold and im to stiff to drive that funny
October 10
mandy replied to Kathy's discussion 'Fall & Winter (vent,ideas,coping)'
i was dx last sept. and i gor to the point were my husband had to shower me because i couldnt move. i was taking 80mg of prednisode and 5pills of mex, and a bunch of blood thinners for my raynouds, and some other stuff, but it was the worst feeling…
October 9
Kathy replied to mandy's discussion 'lower ab. pain'
Mandy, are you still having pain? Any updates?
October 7
Kathy left a comment for mandy
October 6
Rose Mactier replied to mandy's discussion 'lower ab. pain'
Hi Mandy- I am new to this website and the diagnosis of lupus mctd, but I totally agree with Kathy, I would get checked out right away by your doctor. Let us know how everything goes. Rose
September 29

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At 1:05am on December 14, 2009, Kathy gave mandy a gift…
Birthday Balloons
Happy Birthday Mandy!!! Hope it is a painfree day! Enjoy! Kathy
From the Gift Store
At 9:08pm on October 6, 2009, Kathy said…
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At 8:49am on August 31, 2009, Kathy said…
WELCOME ABOARD!
I'm Kathy nice to meet you!
 
 

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