LupusMCTD

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Yvette
  • Female
  • Wareham, MA
  • United States
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New to the group
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Hi all, My name is Yvette, I have just been diagnosed with undifferentiated connective tissue disease. I first got sick at the age of 33 and I am now 49. It has been many difficult years and many o...

Started this discussion. Last reply by Kathy Nov 18.

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Happy Thanksgiving to all my new friends! God bless you all!
on Wednesday
Yvette added a blog post
Today, I think of all that I have to be thankful for and not what I do not have. I am thankful for my husband and four kids. I am thankful for my 2 grandbabies that have stolen my heart. I am thankful for my job. I am thankful for my husbands co-w...
on Wednesday
Maria commented on Yvette's blog post 'wonderwoman used to live here'
You know - Wonder Woman has always been my fav DC super heroine! At that moment, when I thought she had disappeared for me also, I stopped myself cold. If you think about it, going through all that you do and still remaining such a powerful force...
on Tuesday
spunkie commented on Yvette's blog post 'I think we are on illness overload here!'
Yvette, God Bless you and your family. You have been dealt a double whammy, what with your illness and your husbands. I sincerely wish there was something I could say or do to help. You know that we ALL are here for you. Have faith in the Lord an...
November 20
Yvette added a blog post
I guess I am used to having illness and pain, it has become my normal. What has thrown us for a loop lately is my husbands illness which came on suddenly and has us all worried. In August he got real sick with a fever, chills, night sweats, head p...
November 19
Kathy replied to Yvette's discussion 'New to the group'
"When you have so much wrong you either laugh or cry. I guess i am to the point that i have shed enough tears. " Bevi, I hear you on this! Like you I don't speak about my symptoms, unless it's my neck, back that is killing me. I make the Rice Soc...
November 18
My poor hubby is not well :( I am worried for him!
November 17
Bevi replied to Yvette's discussion 'New to the group'
Yvette, Wow - you have a triple whammy. I do not take my pain meds until i just have too. To not be able to take them at all. My heart goes out to you. I try to stay positive even though i have days when im not. When you have so much wrong you eit...
November 17
Yvette replied to Yvette's discussion 'New to the group'
Bevi, I love your philosophy on life and do agree with quality over quantity. It is difficult not knowing what the heck is going on inside my body. I am not going to start on meds until my local doctor is absolutely sure. I have terrible back pain...
November 16
Bevi replied to Yvette's discussion 'New to the group'
Yvette, I have MCTD. I take plaquenil and methotrexate. My dxs was a fluke. I insisted my doctor do something to help me with pain. She did not do pain managment. So she sent me to a rheumy. He dxs me with fibromyalgia and decided to take bloodwor...
November 15
Yvette replied to Kathy's discussion 'MCTD vs UCTD'
thanks Kathy! i'm over it. I had a very good and kind counselor (who isn't even mine) tell me that some doctors just stink! This woman had gone undiagnosed for almost twenty years with an autoimmune illness. It happens and it still is surprising! :)
November 14
Yvette replied to Kathy's discussion 'MCTD vs UCTD'
kathy, I am really glad I checked some of the older discussions. This was super informative and clarified the difference between these two disease processes. I mistakenly thought that the two were interchangeable diagnosises that meant the same th...
November 12
Yvette replied to Daylight's discussion 'New to forum'
Hi Daylight, you have a lot going on to say the least. it seems that some people get more than their fair share of trials. I hope you get answers soon. My doc said after having over $200.00 worth of blood work that all of the antibodies that showe...
November 12
Yvette commented on Kathy's group 'Egg ஐﻬ'
Thanks Kathy for your support. I am really going to just lay low and enjoy the holidays. I want to be able to just spend time with my family and grandkids and not complicate anything for now. I do not like feeling frustrated like that and I am ove...
November 11
Yvette commented on Kathy's group 'Egg ஐﻬ'
Hey, I am the first egg!! Let's get a few more of us and we can scramble something up! Why is it so hard to get a diagnosis or when you get one it get's yanked? I was all ready to get some meds to relieve my symptoms when I was told that a high an...
November 9
Yvette joined Kathy's group
Egg ஐﻬ
Don't know what is wrong? Dr. hasn't a clue? Could be you have Lupus or MCTD. Join us for support!
November 9

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Yvette

Thankful

Today, I think of all that I have to be thankful for and not what I do not have.
I am thankful for my husband and four kids.
I am thankful for my 2 grandbabies that have stolen my heart.
I am thankful for my job.
I am thankful for my husbands co-workers that got together and sent him a gift of $125.00 Stop & Shop Certificate!
I am thankful that my husband and I will soon celebrate our 30th wedding anniversary on December 29.
I am thankful that God has put it on my heart very strongly to rely… Continue

Posted on November 24, 2009 at 7:18pm —

Yvette

I think we are on illness overload here!

I guess I am used to having illness and pain, it has become my normal. What has thrown us for a loop lately is my husbands illness which came on suddenly and has us all worried. In August he got real sick with a fever, chills, night sweats, head pain and leg cramps. After a stay in the hospital and the discovery of a high sed rate and positive crp he was referred to a surgeon. the surgeon biopsied his temporal artery and although it came back negative the rheumy specialist diagnosed him with tem… Continue

Posted on November 19, 2009 at 1:36pm — 1 Comment

Yvette

Rheumy Appt in Boston Tomorrow

Tomorrow I see Dr. Todd at Brigham and Womens Hospital in Boston, Ma. I used to get all excited before I went to see a specialist because I had such anticipation for a diagnosis at long last and maybe a medicine to improve my quality of life. In all of the past sixteen years that this disease as eluded detection from any laboratory test I still held out hope that someone would "hear" me . Instead, I would sit there invisible, shivering in a jhonny with purple feet while a doctor read notes and l… Continue

Posted on November 2, 2009 at 8:08pm — 2 Comments

Yvette

My Heart Feels Broken But It's just My Chest That Hurts!

People commonly refer to broken hearts when they lose a love and endure a break up. My heart hurts but not for emotional reasons it is purely physical. Pericarditis calls on me now and again usually it starts with one ice pick jab that stops me in my tracks. I never know when it will hit and it layed low for a very long time. At least I don't run off to the E.R. anymore. Even when my heart gets tachy and hits 160 BPM I hold my ground. Probably not the most intelligent thing to do but I kind of h… Continue

Posted on October 24, 2009 at 10:35am —

Comment Wall (3 comments)

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At 5:52am on October 25, 2009, spunkie said…
Hope you are having a great weekend. God Bless!!!
At 8:00pm on October 21, 2009, Kathy gave Yvette a gift…
Jack o' Lantern
Happy Halloween!
From the Gift Store
At 4:07am on October 19, 2009, Kasha Deese said…
Thanks for the sweet and thoughtful comments Yvette. Hope you are having a pain free day!
 
 

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