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Julianne
- Female
- Reno, NV
- United States
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Has anyone with MCTD had any severe experiences with Raynaud's? It has been a huge problem for me. My fingers, toes and tongue all turn blue and white. A couple years ago, I had the tip of one finger turn black and then fall off. I went to college n…
That's actually good, white=no blood, blue and purple=some blood but no oxygen. So that may mean, if you are taking a med to prevent this, that it is working at least a little bit
I guess I am going to have to start carrying gloves with me, also. Can't even go into Walmart without my fingers changing colors. They used to just turn white, but lately they are turning more purple. Freaked me out the first time it happened. Going…
Kasha... Right Said Fred said it best in the 1990's..
"I'm too sexy for my shirt, too sexy it hurts..."
Seriously tho, please carry or wear the gloves, even if you don't feel any pain but just see color changing, just wear the gloves.
With fall arou…
you guys have me freaking out... I didn't realize until coming on here that you can lose limbs. I had an appointment with my rhuemy on last Thursday and he started freaking out when my hands started changing... I am so used to it, but he grabbed bla…
YIKES! your tongue!!
I despise the winter even tho it's mild in California.Summers are bad for me in public places as air conditioning feels like sharp pins and needles sticking me and it HURTS so bad! (Worse places to be in a hospital or the refrig…
One of my first symptoms was Raynaud's, and I have a pretty sever case i am told. My toes turn blue when I get cold AND when I am stressed. My fingers turn stark white at the slightest of temp changes. I was on some stuff for a while but saw no real…
Julianne,
My prayers are with you and anyone with raynauds. My mother had raynauds and I know how painful it can be. She lost the tip of her finger also. Unbelieveable how this disease can affect ones life. She finally moved to Florida hoping the wa…
Wow Julianne, I do have a lot of problems with my Raynauds... not to the point of my tips turning black and falling off, but I am starting to develop small ulcers on the tips ever so often... they are so painful... people usually think I chew on my…
Has anyone with MCTD had any severe experiences with Raynaud's? It has been a huge problem for me. My fingers, toes and tongue all turn blue and white. A couple years ago, I had the tip of one finger turn black and then fall off. I went to college n…
Julianne's Blog
Raynaud's
Has anyone with MCTD had any severe experiences with Raynaud's? It has been a huge problem for me. My fingers, toes and tongue all turn blue and white. A couple years ago, I had the tip of one finger turn black and then fall off. I went to college near Boston so there are cold winters and I had to walk to class. I take 90mg of procardia and an adult aspirin everyday and use nitroglycerin ointment as needed. This helps but doesn't eliminate the problem. Anyone found something that works really we… Continue
Posted on August 19, 2009 at 3:38pm — 8 Comments
Comment Wall (5 comments)
- At 9:09pm on October 6, 2009,
Kathy said…
- At 7:49am on August 28, 2009,
Kathy said…
- At 6:37pm on August 27, 2009,
Patricia Tuttle said…
- Hi, I haven't been able to access the site for a week! Something must have been going on with the login. Anyway, thanks for the response. I have MCTD, Dx about 3 months ago. I am 55 and the fatigue is really getting to me. I have been out of work most weeks for 1 or 2 days because I just can't function. Sooo tired and having difficulty thinking straight. I have Raynauds too but it's not too serious (yet).
Glad to hear that you will be starting your new job! Good luck with that. I'm looking forward to retirement or possibly disability, but I'm much older than you. Again, thanks for posting and I hope to hear from you soon!
- At 2:13pm on August 16, 2009,
Kathy said…
- Welcome Julianne!
Nice to meet you!
Kathy
- At 6:35am on August 16, 2009,
Patricia Tuttle said…
- Hi Julianne....welcome to the group....I am a new member too.
I am so happy to have found other people with this disease to talk to. I'm sure you will be able to get some good info from the other members. When were you diagnosed? How are you doing?
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