LupusMCTD

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Bevi
  • Female
  • Van Buren, AR
  • United States
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Methotrexate
6 Replies

Started this discussion. Last reply by Kyrie Stabler Oct 19.

 

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Patricia, I have MCTD, Raynauds, Sjorgen's, PCOS, Thyroid and Fibromyalgia, Osteoarthritis (my fingers are curling), Restless legs and Chronic Fatigue. I take Synthroid, Ultram, Zanaflex, Plaquenil, Prilosec, Mobic, Mirapex, Ambien, Methotrexate (ch…
November 29
Bevi updated their profile
November 21
My doctor said to get the regular flu shot but not the H1N1 because it had live bacteria in it and with my immune system not working it could trigger the virus.
November 18
Sjogrens But it is secondary to the MCTD. With the evoxac i use eye drops, ayre- the gel for my nose and i drink alot of water for mouth. I have not had any side effects from the medicine.
November 18
Yvette, Wow - you have a triple whammy. I do not take my pain meds until i just have too. To not be able to take them at all. My heart goes out to you. I try to stay positive even though i have days when im not. When you have so much wrong you eithe…
November 17
For me. I was dry eyes, mouth and vagina. The worst was the vg. because it made sex very painful. Almost everytime we had intercourse i would rip. Even using lubricants. The evoxac had made a huge diffrence in that area. Now that i take it i can tel…
November 15
Bevi updated their profile photo
November 15
Yvette, I have MCTD. I take plaquenil and methotrexate. My dxs was a fluke. I insisted my doctor do something to help me with pain. She did not do pain managment. So she sent me to a rheumy. He dxs me with fibromyalgia and decided to take bloodwork…
November 15
i have and it works pretty good but i still have to use eye drops and keep water with me.
November 15
Bevi and Christina Mason are now friends
November 5
A blog post by Bevi was featured
I have been on the lupus/mctd website for a while researching this disease. Normally I just read the posts. Last year I was finally given an dx to my health problems and that was MCTD. I am 37 and happily married. We are both struggling to understan…
October 22
I have. I was on a low dose, but it still made me sick. However, I got sick after a few weeks. Just nauseous, tired, kinda weak..... Eating some food may lessen that, but.....yeah. I was also taking plaquinal and folic acid...so.. Good luck....If…
October 19
If you have a compromised immune system you cannot take it because it has live bacteria unlike the original flu shot that does not.
October 15
(((BEVI))) Gentle hugs... I've heard once it does kick in and works you will be able to be more active once the inflammation calms down. Thank you for lettingus know where your at now. Will keep you in my prayers, Kathy
September 30
I started on 10 mg a week and 2mg folic acid. The plaquenil and NSAIDS did not stop the inflammation. As the week has progressed i feel less sick but i have to turn around friday and do it all again. As far as the pain i do just live with it. The in…
September 30
I'd be interested to know more too as my doc is recommending I take this drug and to be honest- I hate to try new meds. Always afraid of the side effects. Makes me think I will just 'deal' with any pain.. (if I can). Does it do anything else or is i…
September 29

Bevi's Blog

Bevi

cytoxan

Has anyone taken Cytoxan for MCTD? How did it effect you? Thanks a bunch.

Posted on July 21, 2009 at 11:29am —

Bevi

Mixed Connective Tissue Disease

I have been on the lupus/mctd website for a while researching this disease. Normally I just read the posts. Last year I was finally given an dx to my health problems and that was MCTD. I am 37 and happily married. We are both struggling to understand this disease. I would like to say thank you to the people that put so much into this website. It has given me more information than any other I could find. It helps knowing you are not alone in the struggle with this disease. I take Plaquenil, Ultra… Continue

Posted on July 19, 2009 at 1:19pm — 17 Comments

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At 7:54am on August 28, 2009, Kathy said…
have a great weekend Pictures, Images and Photos
At 9:51am on August 5, 2009, Kathy said…
Wishing you a pain free week!

 
 

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