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Angela's Discussions
PULMONARY HYPERTENSION and MCTD
2 Replies
Started this discussion. Last reply by Kathy Sep 21.
Just feeling sorry for myself and need to vent...
3 Replies
Started this discussion. Last reply by Kathy Sep 3.
hydroxychloroquine questions...
2 Replies
Started this discussion. Last reply by Kasha Deese Aug 31.
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Sorry you have to join us in this ugly disease, but so glad you have found this site! I have MCTD and still have moments of panic, but trying to get better at controlling my thoughts.... which is so difficult to do! ;) ((((hugs)))) --Angela
Diagnosed in June 2009-- I live in alabama- on the gulf coast and am also attending college. I am going through a heckuva flare! Just seems to be getting worse this past month. I am so so stiffand my knees lock so bad I can hardly walk! Do your knee…
Hi Yvette.
I can understand your worry. We have all been there--and I find myself still worrying some 4 months later. I also have the positive ana, sm, rnp, sm/rnp (don't know the difference, but different test there) but without the positive dna.…
Yes. I will be getting the vaccine.
I have always had really cold hands (and feet) that turned white when cold. I didn't know that everyone didn't have this problem. I assumed it was normal for everyone. LOL! I am in sounthern Alabama, so the winter isn't too rough, but still can't st…
I'd be interested to know more too as my doc is recommending I take this drug and to be honest- I hate to try new meds. Always afraid of the side effects. Makes me think I will just 'deal' with any pain.. (if I can). Does it do anything else or is i…
when i was 1st dx because they found some scar tissue in my left lung after a chest exray so that made him do this crazy lung test were i sat in a box a did breathing exercises for like an hour, but that test was normal i also had a few heart exams
I am trying to find out if most of those diagnosed with MCTD have lung problems, more specifically pulmonary hypertension. I read a lot of info about it but seems many people do suffer from it but I hardly see it mentioned in any forums. My doc has…
Thank you Kathy for your prayers, as the BIG MAN upstairs was listening. My husband has to wear what the doc calls a 'loop' machine for the next 3 weeks, but he is home and doing well. I thank you so much.
I wish I had an answer for you, but the highest I have been on is 10mg and currently down to 5 mg every other day (soon to be every 3rd day). I still experience those things. My doc said that he doesn't think I need to be on prednisone though and th…
Hi Angela,
I think prednisone usually makes you gain weight. Hydroxchloroquine (or plaquenil) has suppressed my appetite at times. The weather is actually started to get better so you may be able to walk early morning/early evening to avoid the sun…
I am working , but was just recently diagnosed. I am also going to school to get my RN- and hoping this won't turn out to be a waste of my time. I have wanted to do this so bad for so many yeard and just about to get in the program when diagnosed...…
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