LupusMCTD

Welcome everyone in search of support & information of Lupus & MCTD

Ami
  • 15, Female
  • New York
  • United States
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I'm a newww member! Here's my story!
7 Replies

Started this discussion. Last reply by Sheila Jul 15.

 

AMI

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Latest Activity

Kathy left a comment for Ami
August 5
Hey Amil~! I just joined 2 minutes ago. I have had lupus all my life. Went through school and marriage and raising kids with it. It goes back at least 11 generations in my family. I remember well being 13 with this illness, spending more time in the…
July 15
Hi Ami! Wow. I'm surprised to see another girl close to my age. I'm new too, so, nice to meet you. I have similar problems with the skin rash. It appears on my face and upper thighs. What kind of sunscreen do you use? Do you use the combo lotion…
July 9
myjoy520 left a comment for Ami
June 28
Kimber left a comment for Ami
March 8

Comment Wall (10 comments)

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At 9:59am on August 5, 2009, Kathy said…
Wishing you a pain free week!

At 11:50am on June 28, 2009, myjoy520 said…
Showing Some Love Codes For MySpace

Showing Some Love MySpace Codes & MySpace images

Codes

At 9:28pm on March 8, 2009, Kimber said…
Friends Pictures, Images and Photos
At 11:08pm on October 16, 2008, Amy said…
hello ami my name is amy and i started off with photosensitivity when i was in the 4th grade..that was my only symptom until i was 32...always be sure to have a great rheumatologist and always take your meds!!! thats important...they may make you have an upset stomach at first but that will disappear...talk to me anytime im a open book of knowledge as is all the other ladies here
At 6:20pm on September 28, 2008, tlgf1968 said…
hi ami, welcome =) you'll find tons of great info and support here! glad you found us. we are all blessed that kathy founded this site! =D
At 9:17am on August 19, 2008, Amy L. West said…
You are just a cutie! I have 2 16 year old daughters and I love the teen chatter!!! I understand not wanting to put on the sunscreen and the hats, etc. I am 41 and I don't want to do it either. You will like it here/lots of support.
Amy Lauren
At 7:57am on August 19, 2008, Misti said…
I joined in June.
I have had Lupus/fibro for 20 years.
Make certain you wear your sunscreen, and a hat, and there is a product you can wash your clothes in called sun guard,to help block the sun, all of these will help you in the sun!
And make certain you only go out before 9am, and after 5 pm, in the summer time.: Summer is hard, but in the fall or spring it is much easier.
I love watching tennis, lucky you to be able to play such a great sport!

Misti
At 9:55pm on August 18, 2008, Misti said…
Welcome Ami!
At 8:20pm on August 18, 2008, Kathy said…
Hi Ami!!!
I'll leave you a longer message fter I read your story, wow I bet it's long!
THank you for joining us.
We have a larger more active site for 3 years it's at www.LupusMCTD.com
Check it out when you have time!
Welcome aboard
Kathy
At 7:20pm on August 18, 2008, Ami said…
Heyy everybody!
I'm Ami. I just recently found out I have lupus! This disease is kinda scary and its a pain in the buttt!! Yeah I'm a freshmen and I play tennis!! But the stupid sun makes me sick so I hope i can still playy =/ Well I just wanted to say HII to all the people that go through lupus everyday =] talk to meee!
 
 

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