Hey Amil~!
I just joined 2 minutes ago. I have had lupus all my life. Went through school and marriage and raising kids with it. It goes back at least 11 generations in my family. I remember well being 13 with this illness, spending more time in the…
Hi Ami!
Wow. I'm surprised to see another girl close to my age. I'm new too, so, nice to meet you.
I have similar problems with the skin rash. It appears on my face and upper thighs. What kind of sunscreen do you use?
Do you use the combo lotion…
hello ami my name is amy and i started off with photosensitivity when i was in the 4th grade..that was my only symptom until i was 32...always be sure to have a great rheumatologist and always take your meds!!! thats important...they may make you have an upset stomach at first but that will disappear...talk to me anytime im a open book of knowledge as is all the other ladies here
You are just a cutie! I have 2 16 year old daughters and I love the teen chatter!!! I understand not wanting to put on the sunscreen and the hats, etc. I am 41 and I don't want to do it either. You will like it here/lots of support.
Amy Lauren
I joined in June.
I have had Lupus/fibro for 20 years.
Make certain you wear your sunscreen, and a hat, and there is a product you can wash your clothes in called sun guard,to help block the sun, all of these will help you in the sun!
And make certain you only go out before 9am, and after 5 pm, in the summer time.: Summer is hard, but in the fall or spring it is much easier.
I love watching tennis, lucky you to be able to play such a great sport!
Hi Ami!!!
I'll leave you a longer message fter I read your story, wow I bet it's long!
THank you for joining us.
We have a larger more active site for 3 years it's at www.LupusMCTD.com
Check it out when you have time!
Welcome aboard
Kathy
Heyy everybody!
I'm Ami. I just recently found out I have lupus! This disease is kinda scary and its a pain in the buttt!! Yeah I'm a freshmen and I play tennis!! But the stupid sun makes me sick so I hope i can still playy =/ Well I just wanted to say HII to all the people that go through lupus everyday =] talk to meee!